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Chapters

Purpose of CSF Chapter

CSF Chapters will be formed, in accordance with the CSF bylaws, to:

  • Educate the medical, allied sciences, and lay community
  • Increase awareness
  • Raise funds for programs and research
  • Provide support and advocacy for local area
  • Locate and register individuals and families affected by Chiari malformation, syringomyelia and related disorders with the Chiari & Syringomyelia Foundation.

(Pictured Above: Cleveland, Ohio Chapter Signing - Cathy & Calvin Poznik, Dr. Mark Luciano, Dr. Edward Benzel, Susan Pennypacker, Kara & Sherri Ketchesin)

 

 CSF Chapter Benefits

 Chapter benefits include:

  • Becoming part of CSF’s national volunteer leadership team, who are all working toward finding a cure for these disorders.
  • The ability to host local fundraising events using CSF’s name and tax exempt status.
  • The opportunity to start a support group in your local area.
  • The opportunity for chapter leaders to be part of a monthly networking call with other chapter leaders to exchange ideas and information about programs, local events, fundraising, raising awareness & education, etc.
  • Listing of your Chapter events on the CSF website calendar.
  • A dedicated local chapter webpage on the CSF website.

(Pictured Above: Washington, DC Chapter Signing - Dr. John Heiss, Dr. Mesfins Gebremicheal, Dr. Clair Francomano, Dr. Fraser Henderson, Dr. Dennis Fitzgerald, Dorothy Poppe)

 

Steps to Establish a CSF Chapter

1.  Begin to plan community awareness programs and community fundraising events in your local area in connection with the CSF Community Outreach.

CSF Community Outreach

At the small and informal Community Awareness Program (CAP), you invite your friends, family and others who are interested to learn about CM and SM and about our organization. Our goal is to reach beyond the current CSF membership to raise awareness and educate as any people as possible.

At the larger, more formal Community Fundraising Events (CFE), attendees will join representatives from CSF as they share their commitment to finding a cure for CM and SM. This powerful event will highlight cutting edge research, the human impact of CM and SM, and the vision for CSF's sustainable future, while attendees will have the opportunity to make a donation, if they choose to.

2.  Establish a base of individuals, patients, and families for the national database.

3.  Determine 3-5 committee members to make formal application for chapter.

4.  Apply to CSF National to establish a CSF Chapter in your area.

(Pictured Above: Utica, New York Chapter Signing - Dr. Miseo Nishikawa, Dorothy Poppe, Dr. Dominic Marino, Bob Jones IV, Dr. Roger Kula, Cathy Poznik, Joe Fitzpatrick, Mary Ellen & Jim Feisthamel, Mike & Denise Mikula, Paul Farrell, Denise Aversano, Bob & Toni Rumphrey)

 

If you are interested in starting a CSF chapter in your area or for more information, please e-mail Cathy Poznik or call 330-425-8476.

 

 

(Pictured Right: Denver, Colorado Chapter Signing - Bryan Downey, Paul Farrell, Casey Jo McKim)