Staff

Dorothy Poppe
Executive Director

Dorothy lives in Staten Island, New York and has three children – John attends New York law school, Mary is a senior at Staten Island Academy, and George attends Renssalaer Polytechnic Institute on a Leadership Scholarship and Bobby Jones Scholarship. George was also diagnosed with a Chiari malformation and syringomyelia in 1991 and had two surgeries in 1992.

Dorothy received a Bachelor’s Degree from New York University and a diploma from the Juilliard School in New York City. Dorothy has 17 years of experience in the non-profit arena.  She was formerly National Director of Development at the American Syringomyelia Alliance Project for seven years. Prior to that, she worked for four years as a volunteer fundraiser and subsequently served for six years as an ASAP board member. She was instrumental in many projects including the Pediatric Directory and Resource Guide, the Genetic Study initiated by Dr. Thomas Milhorat and Duke University Medical Center, and the formation of a world renowned Medical Advisory Board.

She is excited at the prospect of working with CSF’s professional board and taking the organization from its grassroots initiative to a national education, research and advocacy group which patients, scientists and medical professionals can rely on.  "I am proud to be part of an organization that attracted the caliber of professional colleagues who have joined CSF and believe in our mission."

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Andrea Grosz
Marketing and Development Director

Andrea lives in Forest Hills, New York with her husband, Ken and six year old daughter, Lauren.

Andrea received a Bachelor’s Degree in Marketing from Hofstra University and started her career in a regional yellow pages publishing company where she was Marketing Coordinator. She later moved on to become Assistant Vice President of Marketing at North Fork Bank, headquartered in Long Island, New York. Before joining CSF, Andrea was Development and Support Administrator for the American Syringomyelia Alliance Project for four years, playing an integral role in the planning and execution of the organization’s fundraising initiatives.

Although she is not personally affected by SM or CM, Andrea is committed to CSF’s mission, to making a difference in the lives of those touched by these disorders and to the dream of someday finding a cure.

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