Utica, New York Chapter
UTICA CHAPTER CHAIR
Mary Ellen Feisthamel
238 Bouck Rd.
Frankfort, NY 13340-4058
720-272-9439
UPCOMING EVENTS
August 27, 2011
6th Annual Benefit and 5th Annual Motorcycle Ride to Help Find a Cure for Chiari Malformation and Syringomyelia
Toccolana Club, 1412 E. Dominick Street, Rome, NY
Sign up is between 8:30am and 9:45am. Ride at 10am and fundraiser is from 12 noon to 5pm.
Tickets: $15 each
Snacks, free beer, food, music, quilt raffle, baskets, silent auction, magician, Chiari information center, children's play area.
Motorcycle Raffle - Motorcyle donated by White Lake Polaris
This year's event will honor Brianna Tebo
About Brianna: Briana is 11 years old and in the 5th grade. At this time, her main symptom from the Chiari malformation is scoliosis. She does have a heart condition and doctors are now doing tests for other neurological and nerve disorders. Brianna's mom, aunt, and grandfather also have Chiari malformation. Her grandfather lives in another state and has had many difficulties from this disease throughout the years. Her mom has not had surgery and suffers daily from pressure headaches, dizziness, and many other symptoms that challenge the daily activities of people living with Chiari malformation.
PAST EVENTS
February 12, 2011
Valentine's Day Gala
7pm - midnight
Location: Twin Ponds Golf and Country Club, 169 Main St., New York Mills, NY 13417
Dinner and Dancing
Featuring: Live music by Showtime
Cocktail Hour: 7pm - 8pm
Sit down dinner includes: Beef tips/Chicken Francaise/Eggplant/Penne Macaroni/Garlic Mashed Potato/Vegetables and Dessert
Raffle Baskets and Silent Auction
Advanced Reservations Only
$130 per couple
$65 per person
Limited seating
For more information or to make a reservation, please contact James or Mary Ellen Feisthamel at 315-794-0069.
All reservations must be in no later than February 11, 2011
Accepting personal checks, money orders, Visa, American Express, Discover, and MasterCard.
October 9, 2010
Utica Fundraiser
Over 100 people including 25 motorcyclists attended the fundraiser and enjoyed delicious food, along with a basket raffle, and sports memorabilia. Thanks to Kathe Pianella and the Utica Chapter for a successful event which raised a net of over $6,000 for CSF!
Toccolana Club, 1412 E. Dominick Street, Rome, NY 13440
Buffet lunch, 50/50 raffle, door prizes, raffle baskets, entertainment
Tickets: $20 per adult/No charge for children under 10
FEBRUARY 13, 2010
Valentine's Day Dinner Dance
The Chiari & Syringomyelia Foundation is pleased to announce the support of the New York State Correctional Officers & Police Benevolent Association, Inc. (NYSCOPBA) Mid State Sector as our Major Sponsor for The Utica Chapter Valentine's Gala. Thank you so much for your generous contribution in helping us find a cure for children and adults suffering from this devastating disease.
Radisson Hotel, 200 Genesee Street, Utica, New York
Cocktail Hour: 7:00pm to 8:00pm
Sit Down Dinner and Dancing: 8:00pm to 1:00am
Dinner includes choice of: Prime Rib, Chicken Francaise or Pasta Bowties with Lemon Basil Alfredo
Champagne and Dessert
Enjoy an evening to remember with a chance to win a Ladies Gold Heart Necklace
Advanced Reservations Only - Limted Seating
Reservations must be in by February 10, 2010. Accepting checks/money order/Visa/American Express/Discover/Mastercard
$130 per couple/$65 per person
For more information or to make reservations, please contact James or Mary Ellen Feisthamel at 315-793-8823 or 315-794-0069.
Proceeds to benefit CSF.
SATURDAY, SEPTEMBER 12, 2009
4th Annual Benefit and Motorcycle Ride to Help Find a Cure for Chiari Malformation and Syringomyelia
Utica Maennerchor - 5535 Flanagan Road, Marcy, NY
Honoring Brigitte Radzisz (Brigitte has lost her eye sight from Chiari malformation and suffers every day from pain) - About Brigitte
Chicken BBQ / Raffles / Cash Bar
Magician Magic Bill will perform
Daylong Activities / Clowns / Face Painting / Silent Auction
Door prizes include: Nintendo Wii system / Wii Fit with balance board and much more...
Tickets: $20 each (Kids under 10 are free)
If you would like to become involved with the Utica Chapter or for more information, contact Mary Ellen Feisthamel.
