Utica, New York Chapter

 

UTICA CHAPTER CHAIR

Mary Ellen Feisthamel

238 Bouck Rd.

Frankfort, NY 13340-4058

720-272-9439

 

UPCOMING EVENTS

August 27, 2011

6th Annual Benefit and 5th Annual Motorcycle Ride to Help Find  a Cure for Chiari Malformation and Syringomyelia

Toccolana Club, 1412 E. Dominick Street, Rome, NY

Sign up is between 8:30am and 9:45am. Ride at 10am and fundraiser is from 12 noon to 5pm.

Tickets: $15 each

Snacks, free beer, food, music, quilt raffle, baskets, silent auction, magician, Chiari information center, children's play area.

Motorcycle Raffle - Motorcyle donated by White Lake Polaris

 

 

 

 

 

 

This year's event will honor Brianna Tebo

About Brianna: Briana is 11 years old and in the 5th grade.  At this time, her main symptom from the Chiari malformation is scoliosis.  She does have a heart condition and doctors are now doing tests for other neurological and nerve disorders. Brianna's mom, aunt, and grandfather also have Chiari malformation.  Her grandfather lives in another state and has had many difficulties from this disease throughout the years.  Her mom has not had surgery and suffers daily from pressure headaches, dizziness, and many other symptoms that challenge the daily activities of people living with Chiari malformation.

 

PAST EVENTS

February 12, 2011

Valentine's Day Gala

7pm - midnight

Location: Twin Ponds Golf and Country Club, 169 Main St., New York Mills, NY 13417

Dinner and Dancing

Featuring: Live music by Showtime

Cocktail Hour: 7pm - 8pm

Sit down dinner includes: Beef tips/Chicken Francaise/Eggplant/Penne Macaroni/Garlic Mashed Potato/Vegetables and Dessert

Raffle Baskets and Silent Auction

Advanced Reservations Only

$130 per couple

$65 per person

Limited seating

For more information or to make a reservation, please contact James or Mary Ellen Feisthamel at 315-794-0069.

All reservations must be in no later than February 11, 2011

Accepting personal checks, money orders, Visa, American Express, Discover, and MasterCard.

 

October 9, 2010

Utica Fundraiser

Over 100 people including 25 motorcyclists attended the fundraiser and enjoyed delicious food, along with a basket raffle, and sports memorabilia. Thanks to Kathe Pianella and the Utica Chapter for a successful event which raised a net of over $6,000 for CSF!

Toccolana Club, 1412 E. Dominick Street, Rome, NY 13440

Buffet lunch, 50/50 raffle, door prizes, raffle baskets, entertainment

Tickets: $20 per adult/No charge for children under 10

 

FEBRUARY 13, 2010

Valentine's Day Dinner Dance

The Chiari & Syringomyelia Foundation is pleased to announce the support of the New York State Correctional Officers & Police Benevolent Association, Inc. (NYSCOPBA) Mid State Sector as our Major Sponsor for The Utica Chapter Valentine's Gala. Thank you so much for your generous contribution in helping us find a cure for children and adults suffering from this devastating disease.

Radisson Hotel, 200 Genesee Street, Utica, New York

Featuring live music by Soul Injection

Cocktail Hour: 7:00pm to 8:00pm

Sit Down Dinner and Dancing: 8:00pm to 1:00am

Dinner includes choice of: Prime Rib, Chicken Francaise or Pasta Bowties with Lemon Basil Alfredo

Champagne and Dessert

Enjoy an evening to remember with a chance to win a Ladies Gold Heart Necklace

Advanced Reservations Only -  Limted Seating

Reservations must be in by February 10, 2010. Accepting checks/money order/Visa/American Express/Discover/Mastercard

$130 per couple/$65 per person

For more information or to make reservations, please contact James or Mary Ellen Feisthamel at 315-793-8823 or 315-794-0069.

Proceeds to benefit CSF.

 

SATURDAY, SEPTEMBER 12, 2009

4th Annual Benefit and Motorcycle Ride to Help Find  a Cure for Chiari Malformation and Syringomyelia

Utica Maennerchor - 5535 Flanagan Road, Marcy, NY

Honoring Brigitte Radzisz (Brigitte has lost her eye sight from Chiari malformation and suffers every day from pain) - About Brigitte

Chicken BBQ / Raffles / Cash Bar

Magician Magic Bill will perform

Daylong Activities / Clowns / Face Painting / Silent Auction

Door prizes include: Nintendo Wii system / Wii Fit with balance board and much more...

Tickets: $20 each (Kids under 10 are free)

 

 

If you would like to become involved with the Utica Chapter or for more information, contact Mary Ellen Feisthamel.