Discovery Health's Mystery Diagnosis
The Discovery Health channel has contacted CSF for our help to find an individual or family affected by syringomyelia who would be willing to share their story on the show, Mystery Diagnosis.
Criteria:
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Patient must have a diagnosis of syringomyelia which went undiagnosed or misdiagnosed for years. (Discovery Health Channel has already featured a story on Chiari malformation and is now seeking an individual with syringomyelia)
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Register on the CSF website
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Complete and return the Mystery Diagnosis questionnaire
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Send a brief synopsis of your story to CSF
About Mystery Diagnosis
Every year, millions of Americans fall prey to real-life medical mysteries—ailments that go undiagnosed or misdiagnosed for years. Their lives are thrown into turmoil—sometimes their sanity is called into question—as medical professionals struggle to understand their baffling conditions.
Mystery Diagnosis tells their stories. The stories are told through intimate interviews with the patients themselves, their families, friends, and doctors. These interviews, in combination with photos and home movies, highly stylized recreations and CGI anatomy sequences, take the viewer step-by-step through a medical odyssey. Symptoms emerge. Tests are analyzed. Specialists are consulted. But still, something is not quite right. Time passes and the daily struggle continues. And then one day, because of a patient's relentless pursuit of an accurate and final diagnosis (or the determined efforts of their family or a forward thinking doctor) the puzzle is solved and an accurate diagnosis given.
In each personal story, the patients, doctors and everyone involved discover the importance of being vigilant. They learn that medicine is often more of an art than a science, and that the journey to diagnosis can be a twisted path full of many surprises.
