Greater Metropolitan Washington Area Chapter
GREATER METROPOLITAN WASHINGTON AREA CHAPTER CHAIR
Dr. Fraser Henderson
Metropolitan Neurosurgery Group
7830 Old Georgetown Road, C15
Bethesda, MD 20814
The Foundation Members:
Anita Savage, Avelene Mahan: Executive Co-Directors of the CSF Washington Chapter; Inge Molzahn: Foreign Patient Coordinator; John Mackall: Director, Capital Contributions; Elizabeth Hampe: Marketing Director
Alphabetically:
Jan Dommerholt, PT, DPT; Dennis Fitzgerald, MD; Robert Gerwin, MD; Mesfins Grebemicheal, MD; John Heins, MD; David Katz, MD; Alexander Mark, MD
It is estimated that up to 3,000 persons in the Washington DC area are affected by Chiari and/or syringomyelia.
“Chiari malformations and syringomyelia often present with nondescript and seemingly unrelated symptoms. Many patients suffer from headaches and declining performance for many years before diagnosis, or may become disabled without any diagnosis being made at all. Our goal is to educate patients and their families on how these disorders may impair neurological function, and how the medical, surgical, and physical therapy management can restore patients to normal productivity and quality of life", says Dr. Fraser Henderson Sr, leading a collaborative effort that includes Dr. John Heiss (NIH Vice Chair Neurosurgery), Dr. Dennis Fitzgerald (NeuroOtology, Capitol Ear Group), Clair A. Francomano (Director, Harvey Institute Adult Genetics, Greater Baltimore Medical Center), Dr. Mesfin Gebremichael (Critical Care Medicine, Doctors Community Hospital), Dr. Robert Gerwin (Pain & Rehab Medicine) Dr. Alexander Mark (Director of Neuroradiology, Bethesda MRI), Dr. David Katz (Director Neuro Opthamology), Dr. Jan Dommerholt (Bethesda Physiocare), and Lady Malloch–Brown (Mother and advocate).
If you would like to become involved with the Greater Metropolitan Washington Area Chapter or for more information, contact Susan Mills.
CSF will host quarterly educational presentations with various expert speakers. For more information and to register for these events, please contact Susan Mills at 301-654-9390 or email Susan Mills.
Space is limited so please register soon. And bring a family member!
UPCOMING EVENTS
TBA
PAST EVENTS
WEDNESDAY, JANUARY 18, 2012
SUPPORT GROUP MEETING AND EDUCATIONAL LECTURE
6:00PM SUPPORT GROUP MEETING
7:00PM LECTURE
Expert Speakers: Dr. Myles Koby, Director of Radiology at Doctors Community Hospital, and Dr. Alexander Mark, Director of Bethesda MRI
Topic: Radiological Aspects of Chiari, Syringomyelia , Craniocervical instability and Related Disorders
Location: Professional Office Building, Ground Floor Conference Room, 8116 Good Luck Rd., Lanham, Maryland
About Dr. Mark: Dr. Alexander S. Mark is Medical Director for Bethesda MIU & CT. He has over 20 years of experience in MRI and in advance Musculoskeletal including Arthrography in body CT and ME body. He has a fellowship in MRI and is CAQ certified in Neuroradiology, and has a special interest in Oncology. He was an Assistant Professor of Radiology at UCSF in San Francisco and is an Assistant Clinical Professor of Radiology at University of Maryland Medical Center and George Washington University Medical Center. He earned his medical degree with honors at the Faculte de Medicine in Paris, did an internship at Mount Sinai services and completed his residency in radiology at University of California School of Medicine. Dr. Mark is the author of over 65 scientific and research articles and eight book chapters in medical textbooks.
WEDNESDAY, OCTOBER 19, 2011
SUPPORT GROUP MEETING AND EDUCATIONAL LECTURE
6:00PM SUPPORT GROUP MEETING
7:00PM LECTURE
Expert Speaker: Dr. Alan G. Pocinki
Topic: Autonomic and Sleep Disorders in Chiari Malformation and Ehlers-Danlos Patients
Professional Office Building
Ground Floor Conference Room
8116 Good Luck Rd
Lanham, Maryland
About Dr. Pocinki: Dr. Pocinki received his degree from the Cornell University Medical College. He completed his internship and residency at Washington Hospital Center. Dr. Pocinki is a Clinical Assocate Professor at George Washington University Medical Center, and a Fellow of the American College of Physicians. He has served the D.C. Medical Society in a variety of capacities, including as a Member of its Board of Trustees, and was recently honored by the Medical Society with its Distinguished Service Award. He has also served at the President of the D.C. Society of Internal Medicine, and was named the national Young Internist of the Year by the American Society of Internal Medicine in 1997. His patients recently voted him one of the "Top Primary Care Doctors in Washington" in a leading consumer magazine, and his peers have similarly voted him one of Washingtonian magazine's "Top Doctors."
WEDNESDAY, JULY 20, 2011
SUPPORT GROUP MEETING AND EDUCATIONAL LECTURE
6:00pm SUPPORT GROUP MEETING
7:00pm LECTURE
Expert Speaker: Dr. Fraser Henderson
Topic: Diagnosis and Treatment of EDS Related Cranio-Vertebral Instability in the Chiari Patient
Professional Office Building
Ground Floor Conference Room
8116 Good Luck Rd
Lanham, Maryland
About Dr. Henderson: Dr. Henderson joined Georgetown University, in Washington D.C. as Director of Neurosurgery of the Spine and Cranio-cervical Junction in 1994. He was Co-Director of the Lombardi Neuro-Oncology Division, Co-Director of the CyberKnife Radiosurgery Center, and Medical Director of the Neuroscience ICU and step-down units. He has published over 50 peer reviewed articles and book chapters, and given over 130 invited lectures with a focus on cancer, radiosurgery and the treatment of spine disorders. Dr Henderson is currently in the Top Surgeons (Consumers Research Council of America), Best Doctors in America, Top Doctors (Nichols Institute), and Top Doctors for Northern Virginia, and was awarded the Mayfield Neurosurgical Research Award in 2008.
Dr. Henderson is currently in private practice and is Chief of Neurosurgery at Doctors Community Hospital in Lanham, Maryland. Dr Henderson, his wife, Becky, and three sons, Fraser, Lansdale and Landon live on a farm in Prince Georges County.
WEDNESDAY, APRIL 20, 2011
SUPPORT GROUP MEETING AND EDUCATIONAL LECTURE
6:00pm SUPPORT GROUP MEETING
7:00pm LECTURE
EXPERT SPEAKER: Dr. Joseph Tregaskes
TOPIC: Introduction to Temporomandibular Joint Pain (TMJ) and Oral-Functional Disturbances in Patients with Brain Stem Disorders
Professional Office Building
Ground Floor Conference Room
8116 Good Luck Rd
Lanham, Maryland
About Dr. Tregaskes: Dr. Tregaskes has a professional interest in the treatment of craniofacial pain and special issues often associated with Ehlers-Danlos Syndrome and related brain stem disorders. His expertise is highly regarded by colleagues who seek his collaboration in the care of patients with complicated neurological disorders. Dr Tregaskes completed post graduate studies and training in prosthodontics at Marquette University and earned his DMD at the University of Pittsburg. He is a Fellow of both the College of Prosthodontics and the College of Craniofacial Pain Management. He is a Diplomate of both the American Board of Prosthodontics and the American Board of Craniofacial Pain Management.
TUESDAY, FEBRUARY 22, 2011 - 6PM
SUPPORT GROUP MEETING
Professional Office Building
Ground Floor Conference Room
8116 Good Luck Rd
Lanham, Maryland
Contact Brittney Renehan to register.
TUESDAY, JANUARY 18, 2011
5:30PM SUPPORT GROUP MEETING
6:30PM LECTURE
EXPERT SPEAKER: Dr. Dennis Fitzgerald
TOPIC: Hearing and Balance Disorders Arising From Chiari Malformation and Related Brainstem Conditions
Professional Office Building
Ground Floor Conference Room
8116 Good Luck Rd
Lanham, Maryland
About Dr. Fitzgerald: Dr. Fitzgerald specializes in disorders of the inner ear and the nerves that carry information from the ear to the brain. These include hearing loss, vertigo, dizziness, tinnitus (ringing in the ears), neuronitis, stenosis, autoimmune ear disorders, Bell's Palsy, cholesteatoma, labyrinthitis, Meniere's disease, acoustic neuroma, tumors, and total deafness treatment with cochlear implants (Neurotology).
Dr. Fitzgerald also treats traditional disorders of the ear such as perforated eardrums, ear infections, mastoiditis, otosclerosis, perilymph fistula repairs, and reconstruction following ear surgery (Otology).
Although we treat many patients with simple ear problems, the majority of our patients are referred to us for more complicated conditions. Our patients range from infants to the elderly.
Dr. Fitzgerald is board certified in Otolaryngology and fellowship trained in Otology and Neurotology, he serves a number of professional organizations and medical societies including the Better Hearing Institute, The Deafness Research Foundation, American Academy of Otolaryngology, and American Neurotology Society, among many other organizations that benefit from his work.
Dr. Fitzgerald has authored articles for many scientific publications including American Journal of Otology, Rhinology and Laryngology, JAMA, Laryngoscope and American Family Physician. He is also a clinical instructor at the ENT Department at the Washington Hospital Center.
Capital Ear Group is affiliated with the Washington Hospital Center, INOVA Fairfax Hospital, National Rehabilitation Hospital, Georgetown University Hospital, and Children’s National Medical Center.
THURSDAY, DECEMBER 16
SUPPORT GROUP MEETING
Professional Office Building
Ground Floor Conference Room
8116 Good Luck Road
(Parking available in the garage)
Lanham, Maryland
THURSDAY, NOVEMBER 11
SUPPORT GROUP MEETING
Professional Office Building
Ground Floor Conference Room
8116 Good Luck Road
(Parking available in the garage)
Lanham, Maryland
TUESDAY, OCTOBER 19, 2010
6:00PM-6:30PM - Support Group Meeting
7:00PM - Lecture
EXPERT SPEAKER: Dr. Jan Dommerholt, PT, DPT
TOPIC: Physiotherapeutic Options for Headache After Surgery for Chiari Malformation
Professional Office Building
8116 Good Luck Road
Ground Floor Conference Room
Lanham, Maryland
About Dr. Dommerholt: Dr. Dommerholt is a recognized expert in the physical therapy diagnosis and treatment of persons with myofascial pain syndrome, chronic pain syndromes, and whiplash associated disorders. He has published many articles and more than twenty book chapters on myofascial pain, chronic pain conditions, fibromyalgia, complex regional pain syndrome, and whiplash. Dr. Dommerholt prepares a literature review column on myofascial pain syndrome for the Journal of Musculoskeletal Pain. Together with Dr. Jay Shah, MD, a clinician and researcher at the National Institutes of Health, he has contributed a chapter to Bonica’s Pain Management book, which is one of the most prestigious textbooks on pain management.
WEDNESDAY, AUGUST 11, 2010
Support Group Meeting
Professional Office Building (Conference Room)
8116 Good Luck Rd
Lanham, Maryland
TUESDAY, JULY 20, 2010
Expert Speaker: Dr. Riad Dakheel, Pulmonary Disease, Sleep Specialist, Doctors Community Hospital
Topic: Sleep Disturbances in Chiari Malformation
Professional Office Building
8116 Good Luck Road
Ground Floor Conference Room
Lanham, Maryland
TUESDAY, APRIL 20, 2010
EXPERT SPEAKER: Dr. Robert Gerwin, Associate Professor, Johns Hopkins University
TOPIC: Pain Syndromes Associated with Chiari Malformation and Related Disorders
Professional Office Building
8116 Good Luck Rd
Lanham, Maryland
WEDNESDAY, FEBRUARY 17, 2010
SUPPORT GROUP MEETING
Doctors Community Hospital
8116 Good Luck Rd, Professional Office Building
Lanham, Maryland
Ground floor - Conference room. Parking available in the garage.
TUESDAY, JANUARY 19, 2010
Expert Speaker: Dr. Clare Francomano (Harvey Institute for Human Genetics at Greater Baltimore Medical Center)
Doctors Community Hospital
8116 Good Luck Rd, Professional Office Building
Lanham, Maryland
Ground floor - Conference room. Parking available in the garage.
Light refreshments served
TUESDAY, OCTOBER 13, 2009
Expert Speaker: Dr. John Heiss (NIH-Neurosurgery)
Doctors Community Hospital
8118 Good Luck Rd, Ambulatory Surgery Building
DSE Room, Fifth Floor
Lanham, Maryland
Light refreshments served
TUESDAY, JULY 21, 2009
Doctors Community Hospital
8118 Good Luck Rd, Ambulatory Surgery Building
DSE Room, Fifth Floor
Lanham, Maryland
