2008 Events
December 2, 2008
Cleveland Clinic Family Health Center
5001 Rockside Road
Independence, Ohio
This group is for adult patients or parents of patients affected by CM and/or SM. Family members are welcome.
October 23, 2008
Hilton Garden Inn
Twinsburg, Ohio
Dr. Frank Loth from the University of Akron and Dr. Ed Benzel from the Cleveland Clinic were the keynote speakers at the second annual Cleveland Awareness & Education Event.
September 22, 2008
Silverhorn Golf Club
1100 West Bitters Road
San Antonio, Texas
We are so grateful to have received over $36,000 (and donations keep coming in) from the Conquer for Kaya Golf Tournament, with 100% of these funds being used for research.
September 14, 2008
Thunderhart at Sunny Hill Resort & Golf Course
2740 County Route 67
Freehold, New York
10:00am tee time. $75 registration fee includes green fees, cart, chicken barbecue with beer and soda, and raffle (including sports items).
September 14, 2008
Danskin Women's Triathlon Series '08
Sandy Hook, NJ
Patty Kosty trained to compete in her first triathlon and competed in a half mile swim, 12 mile bike ride and 3 mile run to raise funds for CSF.
September 7, 2008
Arlington Park Race Course
2200 W. Euclid
Arlington Heights, Illinois
There were over 300 people in attendance on September 7, 2008 at the beautiful Arlington Park Race Course. We are happy to report that this event raised over $200,000 for the quarter of a million people who suffer with CM & SM.
August 2, 2008
The Westin O'Hare
Chicago, Illinois
The meeting was led by consultants from Executive Service Corp. of Chicago, who lent their extensive knowledge base and expertise to this day-long retreat.
July 26, 2008
Utica Maennerchor
5535 Flanagan Road
Marcy, New York
This event had something for everyone and James and Mary Ellen Feisthamel were happy to have raised over $11,000 for CSF.
July 22, 2008
Sabroso Mexican Grill
1225 Ken Pratt Blvd.
Longmont, Colorado
We are pleased that 10% of Sabroso Mexican Grill's profits from 5pm to 9pm on July 22nd went to CSF and this money will go towards research to help find cures for CM and SM, as well as to help with the cost for local support and awareness programs.
May 12, 2008
Indigo Creek Golf Club
9480 Indigo Club Drive
Murrells Inlet, South Carolina
The 8th Annual Tournament was held on the beautiful Indigo Creek Golf Course. The Syringo-My-What Support Group is partnering with CSF to raise awareness and research funds.
April 26, 2008
Chicago, Illinois
Members of the CSF Medical Research Board met in Chicago to draft short term goals and to set clinical, scientific, research, educational and corporate strategies.
April 5, 2008
Hilton Garden Inn
1100 South Avenue at Lois Lane
Staten Island, New York
There were 230 people in attendance that evening for fun and festivities. CSF was happy to be able to raise additional funds of over $100,000 for the quarter of a million people who suffer with CM & SM.
March 24, 2008
Dallas, Texas
The CSF Bobby Jones Society, our Board of Trustees, met to outline a financial plan for 2008 and three year fiscal goals for the Chiari & Syringomyelia Foundation.
February 26, 2008
N/A
CSF introduced our distinguished Medical Research Board, who have committed their leadership, counsel and support for our organization.
January 11, 2008
Chicago, Illinois
The entire Board of Directors and staff met in Chicago under the guidance of Executive Service Corp. to chart a course for 2008.
