Events Calendar
|
November 12, 2007 |
CSF Fundraising & Education Event More than 100 people attended the first CSF fundraising and
education event in Aurora, CO. Dr. John Oro from the Neurosurgery
Center of Colorado educated the group about CM and SM. Paul
Farrell, Chairman of the CSF Board of Directors presented CSF's
vision. |
|
December 5, 2007 |
CSF Fundraising & Education Event |
|
January 2008 |
Announce Members of CSF Medical Research Board |
|
January 11-12, 2008 |
Strategic Plan Meeting |
|
March 24-25, 2008 |
Bobby Jones Society Meeting |
|
April 5, 2008 |
CSF Charity Ball |
|
April 26, 2008 |
CSF Medical Research Board Strategic Plan Meeting |
|
May 12, 2008 |
Syringo-My-What Golf Tournament The 8th Annual Tournament was held on the beautiful Indigo Creek Golf Course, in the very heart of the Grand Strand's "Low Country" plantation area, just 10 minutes south of Myrtle Beach. The Syringo-My-What Support Group is partnering with CSF to raise awareness and research funds. Lunch, range balls, golf with cart, awards and lots of prizes were just a few of the amenities participants received. For more information on next year's tournament, contact . |
|
July 22, 2008 |
CSF Fundraiser by Casey Jo and Family "Wow, what 18 months can do! Just about 18 months ago, I underwent brain surgery, twice, for two rare incurable (at this point) disorders and I was unsure of what was to come. There were more questions than answers - Would I ever be normal again?, Would this surgery be my cure? I am glad to say that I am doing better. But there are still so many questions and people suffering from Chiari and syringomyelia. So until there is a cure, I will continue raising awareness, support and money, for the Chiari and Syringomyelia Foundation. We are pleased that 10% of Sabroso Mexican Grill's profits from 5pm and 9pm on July 26th will go to CSF. This money will go towards research to help find cures for these horrible brain and spinal cord disorders, as well as help with the cost for local support and awareness programs. Thanks again for all your love and support. We enjoyed some wonderful Mexican food and laughs. A special thanks to Greg and Patti Bensen, the owners of Sabroso, for allowing me to do this! The more money and awareness we raise for this cause, the more hope we give to all who suffer for it." - Casey Jo McKim |
|
July 26, 2008 |
3rd Annual Benefit/2nd Annual Motorcycle Ride To Help
Find A Cure for Chiari Malformation &
Syringomyelia This event had something for everyone. Guests enjoyed a chicken BBQ and cash bar while listening to a live blues band. Many area vendors were present and a silent auction included gift baskets from local businesses as well as specialty items, like signed authentic sports memorabilia. There were daylong activities and special guests. The excitement will really begin as guests welcome the roar of motorcycles that will arrive during the first hour of the event. $20 donation per person (kids under 10 are free). For more information about next year's event, call James and Mary Ellen Feisthamel at 315-793-8823. |
|
August 2, 2008 |
CSF Three-Year Strategic Plan Meeting The meeting was led by consultants from Executive Service Corp. of Chicago, who lent their extensive knowledge base and expertise to this day-long retreat. The meeting was attended by the entire CSF Board of Directors, along with members of the CSF Board of Trustees, Medical Research Board and staff. The goals and objectives of this meeting were to lay out a comprehensive three-year business plan, program agenda and research endowment strategy. |
|
September 7, 2008 |
Race for the Cure The first annual CSF Arlington Race for the Cure event will be held at the beautiful Arlington Park Race Course in Arlington Heights, Illinois. The day begins at noon, with horses posting at 1pm. Join us for a delicious lunch buffet, open bar and a wonderful silent auction with autographed sports and celebrity memorabilia, fabulous art, dazzling jewelry and spectacular trips. LIVE AUCTION: Tiger Woods and Muhammad Ali memorabilia, chinchilla fur jacket (valued at $6,000), 90' dinner yacht cruise, and dinner and golf with Bob Jones IV (grandson of famed golfer Bobby Jones). Raffle: 50" Flat Panel HDTV. If you are interested in being a part of the Arlington Fundraiser or would like us to invite your friends, relatives or business associates, please contact . |
|
September 14, 2008 |
Harnett Golf Tournament Join the Hartnett Family for a fabulous day of golf, food and fun in the Catskills! 10:00am tee time. $75 registration fee includes green fees, cart, chicken barbecue with beer and soda, and raffle (including sports items). Thunderhart Golf Course Thunderhart (at Sunny Hill) is an 18-hole, par 72 course featuring over 6,400 yards of scenic and professionally manicured beauty. Three sets of tees allow golfers of all skill and experience levels to enjoy themselves. The front nine provides a traditional golf experience with 3 holes measuring over 500 yards. The back nine was created in the Parkland style, which has each hole cut through the beautiful forest of the Catskills. Set in the Catskill Basin, Thunderhart offers 11 ponds and 15 sand traps to challenge the most experienced golfer, while providing breathtaking views. For more information on the golf tournament, please e-mail or call John at 914-337-7086. You can also contact Kevin Smith from Sunny Hill Resort & Golf Course at 518-634-7698 for information about overnight accommodations at the resort. |
|
September 14, 2009 |
I TRI for CSF Fundraiser Patty Kosty is training to compete in her first triathlon and will be competing in a half mile swim, 12 mile bike ride and 3 mile run. She has been training since January and her goal is to finish the race and have fun doing it! She has chosen to raise funds for CSF while competing in this race. Patty's brother, Paul Farrell, CSF's Chairman and Founding Member, has suffered with syringomyelia since 1989 and her cousin, Erin, was recently diagnosed with Chiari malformation. "This race is a huge challenge for me but nothing compared to the daily challenges my brother faces as well as the quarter of a million people who suffer from SM and CM." Please make your donation online by clicking here. (Click Donate Online button, then select General Donation and indicate "I TRI for CSF" in the comments section). |
|
September 22, 2008 |
Conquer for Kaya Golf Tournament Join the Culver family for a day of fun! Debbie and Bruce Culver started this tournament two years ago to help raise money for CM/SM research. Their hope is that their granddaughter, Kaya, and the many others with Chiari and syringomyelia, would be able to someday lead normal, pain free lives. For more information, visit www.conquerforkaya.net. |
|
October 23, 2008 |
Cleveland Area Education and Awareness Fundraising
Event Learn how to support the CSF mission in order to build a sustainable foundation, provide expanded program services, increase national awareness and fund research. Light refreshments will be served. For more information, contact . |
|
November 2008 |
CSF Denver Education & Awareness Fundraising
Event |
|
Fall 2008 |
CSF Seattle Education & Awareness Fundraising
Event |
|
March 28, 2009 |
Second Annual CSF Charity Ball |