The Bobby Jones Society was created to recognize superior philanthropic support for the mission of CSF. Our Board of Trustees head this society and provide a high level of strategic guidance to ensure that CSF meets its fiscal goals. The Board of Trustees is composed of successful business executives from around the country who donate their time, financial resources and participate in the development and implementation of plans and goals for CSF.
BOARD OF TRUSTEES
Michael N. Mikula Board of Trustees Chairman
Michael is the Chairman of the Bobby Jones Society and one of its founding members. Michael is also a member of the Board of Trustees of the Chiari & Syringomyelia Foundation, Inc. Michael became involved in trying to find a cure for syringomyelia and Chiari malformations because his grandson, Matthew, is afflicted with Chiari (he had successful brain surgery at two years old).
Michael received his Bachelor of Arts from the University of Wisconsin in 1969 and his M.B.A. from Northwestern's Kellogg Graduate School of Management in 1985. He has successful packaging operations in Illinois and Indiana. Michael is involved in other charitable organizations, most notably the Make-A-Wish Foundation of Illinois. Michael lives in Naperville, Illinois with his wife, Denise, and their six children, all of whom are married and live close by.
Adam Korn is the global head of Equities Franchise and Prime Services Strats. In 2007, he led the team that won the Michael P. Mortara Award for Innovation. He is a member of the Automated Trading Controls Committee. Adam joined Goldman Sachs in 2002 as an associate in the Equity Derivatives Research Group, focusing on market microstructure research. He was named managing director in 2008 and partner in 2010.
Prior to joining the firm, Adam was the co-founder and chief financial officer of a software startup company. He began his career in 1997 at Credit Suisse First Boston in Investment Banking. Adam earned an ScB in Applied Mathematics-Economics from Brown University. He lives with his wife, Margaret, and two children in New York City.
“I am honored to be joining CSF’s Board of Trustees. My involvement is a deeply personal one. My wife, Margaret, has suffered from cerebrospinal fluid disorders for over 10 years. I look forward to collaborating with all of the talented and accomplished people involved with CSF to ensure we remain at the forefront of education, research and cutting-edge technology R&D.”
Philip Down is President & CEO of Doctors Community Hospital in Lanham, Maryland. Doctors Community Hospital is a 200 bed not-for-profit community hospital with 1700 employees and an operating budget of $265 million. Doctors Community Hospital provides full medical-surgical and transitional care. Mr. Down has been with this organization since 1986, and is currently responsible for the strategic direction, finances and overall operations of the institution.
Prior to this position, Mr. Down served as Executive Vice President of Operations at Howard County General Hospital from 1978 until 1986, and Director of General Services at North Shore Children’s Hospital in Salem, Massachusetts from 1977 until 1978. Mr. Down also held administrative positions at several Boston hospitals.
Mr. Down’s professional affiliations include the American College of Health Care Executives, the Maryland Hospital Association and the American Hospital Association. Mr. Down is a board member of the Prince George’s Business Roundtable as well as the Greater Washington Board of Trade. He was appointed Commissioner of the Maryland Health Services Cost Review Commission and served two four year terms. Mr. Down earned his B.S. in Business Administration from Norwich University in 1970 and his Master’s in Health Care Administration from The George Washington University in 1973.
He was commissioned a second lieutenant in the Medical Service Corp of the United States Army in 1970 and fulfilled his active duty obligation. Mr. Down resides with his wife in Ellicott City, Maryland.
Dr. Bob Jones IV is a clinical psychologist in private practice in Conyers, Georgia, in suburban Atlanta. Dr. Jones is the grandson of legendary golfer, Bobby Jones, who suffered with syringomyelia from 1944 until his death in 1971.
Dr. Jones' involvement with CSF reflects both his and the entire Jones' family's commitment to the mission of this organization. Dr. Jones holds advanced degrees in theology and clinical psychology. He has done further post-doctoral training in neuropsychology. In addition to his work as a psychologist, Dr. Jones is an Anglican Catholic priest and serves as the Rector of St. Stephen's Anglican Church in Athens, Georgia.
Dr. Jones lives with his wife Mimi, daughter Melanie, and three retired racing greyhounds in McDonough, GA.
Trish Malloch-Brown began her career at The Sawyer Miller Group, an International Political Consulting firm and, after completing her Masters Degree in International Affairs at Columbia University, served as Program Director at the Open Society Institute, focusing on technology exchanges, media and educational programs in Eastern Europe. Trish was Marketing & Sales Director with Lori Wilkins Immerman and a Partner at Ann McGuire Studios for several years. Currently, Trish is an independent consultant to charities and NGO's focusing on the coordination and development of projects, programs and fundraising strategies. Trish has dedicated herself to humanitarian projects internationally and in her own community. She is co-founder of the Washington Circle, an outreach group targeted at women in Washington, DC who are interested in humanitarian affairs.
Simon J. Archibald, Ph.D., is the Chief Scientific Officer for Integra LifeSciences Corporation. He joined Integra in 1997 as Senior Director of Neurological Programs to oversee the clinical and commercial development of the NeuraGen nerve guide system and to explore the development of a neurosurgical product line from the existing Integra collagen business and patent port-folio. In 1997 he initiated the program that resulted in the development of the DuraGen dural graft matrix for which he is a co-inventor. In 1999 he was promoted to vice President of R&D for the new Integra NeuroSciences business and in 2001 he was promoted to Vice President of Clinical Affairs. Previously Dr. Archibald was an Assistant Professor in the Department of Neurosurgery at Duke University Medical Center to which he was appointed after completing research Fellowships in Department of Neurosurgery at Duke University Medical Center and in the Department of Neuropathology and Neuroscience at Harvard Medical School. He graduated with a degree in Zoology from the University of Reading in the UK, and has a Ph.D. in Biomedical Engineering from the University of North Staffordshire in the UK. His primary research focus is in peripheral and central nervous system regeneration with a particular emphasis of translating discoveries in the basic sciences to clinical practice.
"Burt" lives in Dallas, Texas and has two children, one married with three children, the other is single. They all live within the Greater Dallas/Ft. Worth area, so they see each other frequently. He is a widower, having lost his wife of twenty-three years in 2001 as a result of a car accident.
Burt holds the Office of President of the holding company that owns income-producing real estate in Dallas, primarily. The company is a family owned corporation which originated in 1939 by his grandfather. Burt has held this position for twenty-six years, but worked his way through the ranks.
Burt has syringomyelia, which is inoperable at this time, as well as chronic obstructive pulmonary disease (COPD), which limits him physically. He can sympathize with many in the CSF family as he, too, suffers similarly but perhaps not as severely as others and looks forward to a cure for SM and CM.
Doug lives in Springfield, Illinois with his wife, Karen, to whom he's been married for 28 years. They have three children, Benjamin 26, married to Ai, Melissa 24, married to Scott, and Andrew, 19.
Doug received his Business Administration degree from Florida Southern College, Institute for Management at Benedictine University. He has been President and Owner of Edgewood Golf Club, located in Auburn, Illinois, since 1991 and is a partner in Dundalk 5 – thoroughbred horse racing. Doug is a trustee of the Bobby Jones Society and of Springfield College in Illinois. He is also a member of the National Golf Course Owners Association, the Chicago Golf Club and the Island Bay Yacht Club.
In addition to his love of golf, his interests include spending time with his family, reading, traveling, sports, outdoor activities and charitable endeavors.
Dr. Richard Kuntz is a senior vice president of Medtronic, Inc., and president of Medtronic Neuromodulation, which encompasses the company's products and therapies used in the treatment of chronic pain, movement disorders, spasticity, overactive bladder and urinary retention, benign prostatic hyperplasia, and gastroparesis. In this role, which he assumed in October 2005, Kuntz is responsible for the research, development, operations and product sales and marketing for each of these therapeutic areas worldwide.
Kuntz brings to Medtronic a broad background and expertise in many different areas of healthcare. Prior to Medtronic he was the Founder and Chief Scientific Officer of the Harvard Clinical Research Institute (HCRI), a university-based contract research organization which coordinates National Institutes of Health (NIH) and industry clinical trials with the United States Food and Drug Administration (FDA). Kuntz is recognized as one of the world's leading experts in cardiovascular disease clinical trials. He has directed over 100 multicenter clinical trials involving more than 45,000 patients and has authored more than 200 publications. His expertise in trial design and biostatistics is well-known in industry, academic and government circles.
Kuntz also served as Associate Professor of Medicine at Harvard Medical School, Chief of the Division of Clinical Biometrics, and an interventional cardiologist in the division of cardiovascular diseases at the Brigham and Women's Hospital in Boston, MA.
Kuntz graduated from Miami University, OH in 1979, and received his medical degree from Case Western Reserve University School of Medicine in 1983. He completed his residency in internal medicine at the University of Texas Southwestern Medical School, Dallas, in 1987. He then completed fellowships in cardiovascular diseases and interventional cardiology at the Beth Israel Hospital and Harvard Medical School, Boston, in 1991. Kuntz received his master's of science in biostatistics from the Harvard School of Public Health in 1990.
Sean Lilienfeld , a board certified neurologist, is Vice President, Clinical Research & Medical Affairs at Codman & Shurtleff Inc. and at DePuy Mitek, which are Johnson & Johnson companies. Sean is a member of the board of directors at these companies. He is also co-chair of the J&J Medical Device and Diagnostic sector's Clinical Leadership Council (CLC), a committee made up of the clinical leadership of each J&J operating company in this sector. Sean is also the chair of the CLC's Medical Affairs and External Affairs sub-committee.
Dr. Lilienfeld has been involved in the development of medications and medical devices in the field of Alzheimer's Disease, migraine, epilepsy and other conditions affecting the nervous system. He is a recipient of the Johnson and Johnson medal for Research and Development (2003); this medal represents the corporation's highest honor for research and development excellence. It was created in 1960 to recognize those individuals within the corporation whose creative scientific and technological accomplishments are the foundations for significant and successful new Johnson & Johnson products. Sean has published extensively in the medical literature and has presented papers and abstracts at many US and international meetings on subjects relating to neuroscience. He is the holder of several patents in this field too.
Dr. Lilienfeld trained in medicine in Johannesburg, South Africa. He received the degree of MBBCh at the University of the Witwatersrand in 1984. He became a Fellow of the College of Physicians in Neurology and board certified in 1991. He obtained a Masters in Medicine at the University of the Witwatersrand in 1996. He became registered in medicine in the United Kingdom in 1997. From 1991 to 1995 Sean served as an attending and then senior attending neurologist at the Johannesburg Hospital. Following 2 years in private practice, he joined Johnson & Johnson at the Janssen Research Foundation in Belgium. In 2000 he relocated to New Jersey and continued his work in drug development with J&J there. In 2003 he was appointed to the Codman board and relocated to Massachusetts.
Sean is a Fellow of the American Academy of Neurology and a member of many US and international medical societies including the Congress of Neurological Surgeons (US), the Neurology Association of South Africa, the Belgian Neurological Society (1997 to 2001 only) the International Psychogeriatrics Association, the American Society of Experimental Neuro-Therapeutics, and the American Academy of Pharmaceutical Physicians.
Sean, his wife Haidee, and their 3 children live in Sharon, MA.
Dr. Megerian graduated with a B.S. in Biology and Chemistry in 1985 from Union College, Schenectady, NY. In 1993, he obtained his M.D./PhD under a scholarship from the Medical Scientist Training Program at Northwestern University Medical School after completing his PhD thesis in developmental cellular neurobiology. He went on to do a residency in Pediatrics at Boston Medical Center, and obtained board certification in General Pediatrics, which he continues to practice on a part-time basis. In 1995, he began residency and fellowship training in Neurology and Child Neurology through the Harvard-Longwood Neurology Training Program and the Boston Children's Hospital Child Neurology Training Program. He received board certification in Neurology, with a special qualification in Child Neurology in 2009, and went on to do a fellowship in behavioral neurology and neuropharmacology at Childrens Hospital, under the mentorship of Dr. David Urion. A recipient of the NIH's 5 year Neurological Science Academic Development Award (NSADA), Tom participated in the program for effectiveness in clinical research through the Havard School of Public Health and spent 5 years doing clinical research in the areas of attention deficit disorder, sleep disorders, and functional neuroimaging. After completing the NSADA program, Dr. Megerian joined Neurometrix, Inc. to build up the clinical research program. During his tenure there, he provided leadership in product development and clinical research, emphasizing evidence generation through a strategy of rigorous scientific clinical research and publication. In May of 2007, he joined EPIX Pharmaceuticals, Inc. where he was responsible for building a world class clinical research team dedicated to executing the highest quality clinical studies across the company's broad portfolio of programs in Alzheimer's disease, schizophrenia, pulmonary hypertension and obesity.
In 2009, Tom joined Codman & Shurtleff, part of the Depuy Synthes Franchise of Johnson & Johnson's, as the WorldWide Director for Clinical Research and Medical Affairs. Now serving as Vice President for Scientific and Medical Affairs under the skillful mentorship of Depuy Synthes' Chief Medical Officer Sean Lilienfeld, Tom is responsible for collaborating with the Clinical Research team to provide strategic clinical leadership for Codman's extensive neuroscience portfolio which focuses on treatments for hydrocephalus, stroke, brain injury, chronic pain and spasticity.
Dr. Megerian is a Fellow of the American Academy of Pediatrics and a longtime member of the American Academy of Neurology, American Medical Association, Society for Neuroscience, and Massachusetts Medical Society. He is also a member of Alzheimer's Association and Alzheimer's Association International Society to Advance Alzheimer Research and Treatment (ISTAART). The co-author of many scientific papers and abstracts in neurology, Dr. Megerian is also a medical editor for EBSCO publishing and has presented at many meetings on Alzheimer's Disease, Attention Deficit Disorders, Gil de la Tourette Syndrome and Autism. Dr. Megerian continues to practice neurology 1/2 day per week at Boston Children's Hospital.
Bob is a member of the Board of Trustees of the Chiari & Syringomyelia Foundation. He was diagnosed with syringomyelia and Chiari in 1990 and had surgery in 1991. He has been committed to raising awareness of these conditions since his diagnosis, serving in various capacities for the American Syringomyelia Alliance Project, having worked extensively on their annual charity ball.
Bob served his country as a Navy Corpsman during the Vietnam War from 1967-1968. Since 1983, Bob has been Vice-President of Sales for Command Web Offset Company, a prominent book manufacturer located in Secaucus, New Jersey. He is a member of the Bookbinders Guild of NY as well as of Bookbuilders of Boston, Massachusetts.
Bob has three adult children and three granddaughters and is thankful to be able to maintain an active lifestyle, enjoying hunting, fishing and golf. He and his wife, Toni, live in Warren, New Jersey with their English Bulldog and Labrador Retriever.