The Discovery Health channel has contacted CSF for our help to find an individual or family affected by syringomyelia who would be willing to share their story on the show, Mystery Diagnosis.

Criteria:

Join the Race for the Cure at the 2nd Annual Arlington Fundraiser

The Sky Suites, Arlington Park Race Course
Arlington Heights, Illinois

September 13, 2009 - 12:00pm-5:00pm

Lavish Lunch Buffet, Open Bar, Silent Auction

Tickets: $150 per person. Formal invitations will be mailed in July.

Gene Talk: What Do We Expect From Families and their Doctors? is a US national study sponsored and funded by the National Institute of Health. The purpose of this study is to collect thoughts, opinions, and beliefs from patients and providers about who has responsibility for sharing genetic risk information within families, and when it is morally acceptable not to share information. The investigators believe that the opinions of people like you, who actually live with these situations, are key to their research.

Chairman's Update
 
As you may know, CSF was founded in October 2007 by a group of dedicated and exceptionally committed people who wanted to see our vision of finding a cure for CM and SM become a reality. I'd like to update you on the progress we've made in 2008, in such a short period of time.