Mission

To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related CSF (cerebrospinal fluid) disorders.

Upcoming Educational and Awareness Meeting

NORTHWEST REGIONAL CHAPTER

WEDNESDAY, SEPTEMBER 22, 2010 - 6:00pm

Expert Speaker: Dr. Richard Ellenbogen, University of Washington-Dept of Neurological Surgery, Harborview Medical Center, Seattle Children's Hospital

What's New in Research

CSF in Washington

Dorothy Poppe, Executive Director of the Chiari & Syringomyelia Foundation returned to Washington DC to continue talks with the NIH.

3rd Annual Race for the Cure

Join us at the Arlington Park Race Course in Arlington Heights, Illinois for the third annual Race for the Cure. Enjoy an afternoon of great food and good friends as we watch the exciting horse races and bid on fabulous silent auction items.

Race for the Cure corporate and/or individual sponsorships are available.

Some of the great auction items which will be available at this year's Race for the Cure:

Utica Chapter Fundraiser

Date: 
October 9, 2010
12:00-5:00 PM
Location: 
Toccolana Club, 1412 E. Dominick Street, Rome, NY 13440
Join us for an afternoon of good food and fun in Rome, New York.

Buffet lunch, 50/50 raffle, door prizes, raffle baskets, entertainment

Tickets: $20 per adult/No charge for children under 10

For information or to purchase tickets, please contact Kathe Pianella at 315-336-5236 or via email.

1st Annual Bobby Jones Classic for CSF

The first annual Bobby Jones Classic for CSF, to be held from April 2-4, 2011 will strive to honor, celebrate and exemplify the life and legacy of Bobby Jones. Limited to 100 amateur golfers, Monday’s pro-am field will feature legendary golf professionals.

What's New at the National Institutes of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS)!

CSF is continuing our dialogue with the NINDS and the NIH. Below are links to NINDS Notes (the NINDS newsletter), NINDS news releases, NINDS funding opportunities, NIH Public Bulletin, NIH News in Health (the NIH monthly newsletter), and NIH clinical studies on Chiari and syringomyelia.

NIH Chiari Malformation Clinical Studies

NIH Syringomyelia Clinical Studies

Think Tank Meeting Recap

Thank you to the Richmond County Savings Foundation for their support of the 2010 CSF Think Tank Meeting.

On May 1, the Chiari & Syringomyelia Foundation held their annual “Think Tank” meeting in Philadelphia, Pennsylvania. In attendance were members of CSF’s Board of Directors, Board of Trustees, Medical Research Board (MRB) and staff.

Letter from the Chairman

At this joyous time of year, we reflect on the many blessings 2009 held for the Chiari & Syringomyelia Foundation. Thanks to you and your generous gifts, we accomplished many short term goals in 2009, established the framework for many exciting long term projects, and now we look forward to a fruitful and productive 2010.

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