Built on Leadership, Vision and Commitment to Find a Cure
Mission
To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related CSF (cerebrospinal fluid) disorders.
As a new year begins, we can reflect on the extraordinary accomplishments achieved in 2011 by the Chiari & Syringomyelia Foundation. Thanks to you and your generous gifts, CSF attained many of the short term goals we set for 2011, and we have laid the groundwork for many new and exciting long term projects. I’d like to update you on the progress we made in 2011, as we look forward to an exciting and productive 2012.
“It was such an honor for me to be included in the CSF events this past weekend in New York. The patients and their families were inspiring, as is the grit and determination of the medical professionals to advance the work of treating and finding a cure for Chiari, syringomyelia, and related disorders. I came away with a much better understanding of the scope of CSF and the many people worldwide who are affected by it, as well as a sense of hope and admiration for all of you who have made it your life’s work.
The Lois & Richard Nicotra Foundation awarded over $13,000 on December 8 to 14 organizations and programs designed to benefit the Staten Island community.
This was the fourth award ceremony for the foundation's inaugural year. More than $25,000 has been distributed to 31 organizations.
The Chiari & Syringomyelia Foundation is pleased to announce the inaugural competition for small grant proposals.
The purpose of the trainee award is to encourage clinicians and scientists at the early stage of their career to develop long-term interests in the etiology and treatment of Chiari, syringomyelia and related conditions.
Dr. Bob Jones is a member of CSF's Board of Trustees. His grandfather, Bobby Jones, was afflicted with syringomyelia and suffered for 27 years until his death in 1971.
The Lois & Richard Nicotra Foundation awarded over $13,000 on December 8 to 14 organizations and programs designed to benefit the Staten Island community.
