**NBC sports, tour championship help spark awareness**
NBC Sports and the TOUR Championship by Coca-Cola helped bring about more awareness for Chiari malformation, syringomyelia and related disorders on Saturday, September 13, 2014 when Emmy-award winning sportscaster Jimmy Roberts interviewed CSF Chairman Paul Farrell, and Bobby Jones historian, Dr. Linton Hopkins. The pair discussed syringomyelia, which brought Bobby Jones' legendary golf career to a swift halt. The spot highlighted that despite the fact that syringomyelia, Chiari and their related disorders affect over a million people in the US, alone; more than ALS (Lou Gehrig's disease). But while ALS had its "ice bucket challenge," similar awareness for Chiari and syringomyelia has yet to be sparked. Roberts, NBC Sports and the TOUR Championship hope that the awareness generated from this interview will help raise the funds necessary to get rid of these disorders, for good. Thank you to Jimmy Roberts, NBC Sports, the TOUR Championship and East Lake Golf Club for your support!
**CRUSH CHIARI, SMASH SYRINGOMYELIA & WRECK all RELATED DISORDERS!**
It's almost September again, and you know what that means: it's Awareness Month 2014!! This year, we're going to crush Chiari, smash syringomyelia and wreck every last related disorder!
Start by collecting your change in school, at work and in your community... remember: every little bit counts! You can even download "Crush Chiari" (small containers / larger containers) and "Smash Syringomyelia" (small containers / larger containers) printables from our website to tape onto your collection cans and spread even more awareness! Visit the official fundraising website here to register and get started!
Printable Chiari, syringomyelia, related disorder info sheets.
*We are undertaking the momentus task of putting together the first EVER international patient database that will help to improve research for people with Chiari malformation, syringomyelia and related disorders. Learn more here. *CSF will be funding an upcoming colloquium in Boston, MA to discuss co-morbidities that complicate Chiari malformation surgery in October 2014
*Upon scientific review by experts from the CSF Scientific Education & Advisory Board, CSF was pleased to fund the following 2012-2013 grants:
Through no fault of their own, many medical professionals are only vaguely acquainted with Chiari and the methods by which it is treated. CSF wants to help change this. We have put together an educational program called Consider Chiari. The objective of this campaign is to spark awareness, putting Chiari on the radar of medical professionals. We want people to Consider Chiari.
Are you a medical professional interested in learning more about this Consider Chiari? Maybe you are interested in implementing this educational campaign at your place of work? Contact Cathy Poznik for more information andlearn more about past Consider Chiari events.
The fourth annual Dinner Dance for a Cure will take place on Saturday, October 25, 2014 from 6-11:30pm at the Hilton Garden Inn in Twinsburg, OH. The evening will include cocktails, dinner, dancing and a silent auction and raffle. Zum wohl!
To purchase tickets online, visit the online giving page and select "Dinner Dance for a Cure". You may also download a formal invitation directly from our website.
Thank you to our 2014 Dinner Dance sponsors: Key Bank, Visiting Nurse Association of Ohio
night of light children's gala
The annual CSF Night of Light Children's Gala will take place on November 22, 2014 at the Anderson House in Washington, DC. This exclusive white-tie event will be hosted for a limited number of guests in the hopes of furthering research in the fields of Chiari malformation, syringomyelia and related disorders. You may read a recap of last year's Night of Light Gala here.
Eighth Annual csf charity ball
The eighth annual CSF Charity Ball will be held on Saturday, March 14, 2015 at the Hilton Garden Inn -- Staten Island, NY. The evening promises to include fabulous cocktails, a delicious dinner, silent auction, and of course, lots and lots of fun gaming!
To see all the fun that was had at the 2014 Charity Ball, visit our Facebook page and view our 2014 Charity Ball photo album! You may also click here for a recap of the evening.
4th annual bobby jones classic for csf
The fourth annual Bobby Jones Classic for CSF will be held on May 17-18, 2015 at world-renowned East Lake Golf Club in Atlanta, Georgia. This exquisite event will include a cocktail reception prior to the tournament, exclusive Bobby Jones tours, an exciting Alexa Stirling putting challenge, a full day of golf at East Lake, all culminating with an awards dinner reception.
On Friday, September 5, 2014, the first annual CSF Cocktails & Couture for a Cure took place at the Chicago Yacht Club from 6-10pm. The evening featured gourmet food, fierce fashion and a chic auction... all for an amazing cause!
You can still download a formal invitation directly from our website here. You are also still able to make a donation to this event if you so choose online or via check. Contact Andrea Grosz for more information on how to do so. Until then... we'll see you next year!
Special thank you to our 2014 sponsors: Excel Displays & Container, the Mikula family, Stryker, John Ruge, MD and Advocate Lutheran General Hospital