Join us on Saturday, June 16, 2012 from 6:00-11:00 PM at the Hilton Garden Inn in Staten Island, New York for a fabulous evening of dinner, dancing and silent auction. 

CSF sponsored the Ehlers-Danlos Syndrom Colloquium which was held on October 1-2, 2011 at the Cosmos Club in Washington DC. Click the link above for the event program. Videos of the Colloqium talks can be viewed by clicking the topics below.

As a new year begins, we can reflect on the extraordinary accomplishments achieved in 2011 by the Chiari & Syringomyelia Foundation. Thanks to you and your generous gifts, CSF attained many of the short term goals we set for 2011, and we have laid the groundwork for many new and exciting long term projects. I’d like to update you on the progress we made in 2011, as we look forward to an exciting and productive 2012.

Greater Metropolitan Washington Area Chapter

“It was such an honor for me to be included in the CSF events this past weekend in New York. The patients and their families were inspiring, as is the grit and determination of the medical professionals to advance the work of treating and finding a cure for Chiari, syringomyelia, and related disorders. I came away with a much better understanding of the scope of CSF and the many people worldwide who are affected by it, as well as a sense of hope and admiration for all of you who have made it your life’s work.

Request for Small Grant Proposals

How Do I Participate in the Duke University Genetics Study?

Exciting New Researchers, Reserach Projects and Proposals